The future depends on what we do in the present
Our Mission is to raise awareness about the role of clinical trials in advancing medical science and healthcare
Why
Clinical trials have the potential to benefit people’s health and can provide options in circumstances where treatment choices are limited or there are none.
Without clinical trials, there would not be any advancement in new medical or therapeutic treatments.
How
We are delivering on this mission through a variety of initiatives that encourage listening, learning, collaborating, networking and sharing.
Participant Experience in Research Surveys:
An exploration of Local and International Approaches
Despite the increased emphasis on involving patients and the public in trial design, there is no systematic or standardised means of capturing participants’ experiences in clinical research. Routinely assessing participant experiences can help provide measurable benchmarks for:
- the ‘participant-centredness’ of current trials
- areas that warrant future attention
- a better understanding of what is needed for participant-centric research
- how to improve recruitment and retention to clinical trials.
The White Coats Foundation Participant Experience in Research Surveys webinar aimed to explore various approaches and strategies for utilising surveys to capture participant experiences in clinical research and a key focus area of the discussion centered on exploring preferences around localised and standardised approaches to survey administration and data collection.
The discussion also looked at the value of surveys as a means to collect data, understand participant experiences, and ensure that feedback is integrated into the clinical trial process to improve participant-centric care.
The content of this report focuses on the valuable insights and viewpoints shared by presenters, panelists and attendees at the webinar conducted on 16 October, 2024.
White Coats News & Blogs
If you have ever taken a prescription medicine, you have a clinical trial participant to thank.
In 2017 “Inspiring Hope” Ideathon a crowdsolving competition designed to generate unique and effective ideas that raise awareness of clinical trials amongst patients, healthcare professionals and the general public.
White Coats Foundation submitted an entry in this competition, and this video was the end result of our entry. It was also the inception of the White Coats Foundation.
What started off as a humble initiative to address the critical need to raise awareness about clinical trials and trial participation evolved into an awareness video and the White Coats Foundation.
The Foundation aims to provide access to resources to better inform the public and health care providers about clinical trials in Australia.
We also want to redefine the White Coat image stereotype and help people understand that anyone can wear a White Coat.
White Coats Foundation recent Initiatives
Your Voice your Story _ Webinar
Your Voice Your Story is now in its third year. It is with much gratitude we thank our storytellers, this year and every year, for sharing their stories. For us, it is a privilege that you choose to do this at our event .
The Webinar Series
Our webinars include presenters and panellists relevant to each topic, and provide an opportunity for people to ask questions, share experiences, listen and learn from others.
What is Consumer Led Research ?
On Wednesday, July 13th White Coats Foundation’s conducted a webinar – “What is Consumer Led Research”. Click below to listen to stakeholders & consumers demystifying this topic.
